Thursday, November 18, 2010
Ease, Trust, Confidence
The image of a spade came to me when someone asked me to take the shape of feeling confident and trusting. I put my hands together on my chest and I felt the shape of a spade, the inverse, if you will, of the heart. In the painting, the spade pulls up energy from below, like roots of a tree. These roots look more like jet flames and the energy suggests rocket power!
Wednesday, November 3, 2010
Witness
Eva's theme came in today as the witness.
I painted the dancing skirt being witnessed. The skirt is in the spot light, held with Witness' gaze, tuned with his blessings. Skirt moves gracefully, confident that her breath is leading her to a deeper place. A place unknown, but she trusts she'll be ok. After all these years of being witnessed and held in the dance, she can trust in each moment how to move or stay still, waiting to feel the inclination to move from within. She's learned to wait patiently to contract and expand. She can trust each moment. If a dancer comes along and groves with her, she can trust it is safe to drop in with another, and the moment she doesn't share the grove or feels inclined to dance away, she does. Let the evening unfold as it may. Witness confirms she has permission.
In the dance tonight, Eva led us to breathe in a blessing for our selves, and to breathe out through our skin blessings for others. Take the time and feel the blessing deep with in at the center of our core, the inner blessing of life force traveling through us.
Someone said my painting looks like a mermaid sitting with a dancer on her tale and scales coiled around her torso.
Thursday, October 14, 2010
Dear LaurenThis is the first time I have painted the same theme two weeks in a row. Last week was energy points along the life force line without the physical body. This week, I imagined myself as I lay on the floor and do my warm up. I breathe into my core. It takes concentration to balance and strength to stay in this form for a minute or two.
The theme today will be the Hara point again. Bring your painting from last
week, too.... For me the Hara point is, where the power and strength of the inner dancer lives..
Hugs to you my dear
Love
Eva
Looking forward what you are coming up with today
In the painting, the background circles represent other Hara points all around, people in my life, people on the dance floor. The washed out circles below are bigger and represent our ancestors, Hara points linked to me genetically.
Tuesday, October 12, 2010
Hara Point
Dance theme from 10-8-10:
Our theme today and next week is "support" .Facing the blank paper, I started with the Hara point. I kept intending to add a figure, to draw a body, but it didn't work out. I kept painting energy points along the Life Force, yet the body did not present.
Today we will go into the inner support of the Hara point, which is one of the energy centers along the center line.
I've been reading the Power of Now and meditating on "beingness." Here it is. The life force that is not dependent on the body to be seen. Maybe the lesson of having cancer is to cultivate my spirit being and worry less about my body being. Of course, I want to stay in my body as long as possible, but maybe if I develop a strong sense of being, when I do lose my body, my spirit will move on in another form.
To my surprise, fellow dancers loved this painting. It is fun to let something unknown emerge. And trust it. Trust my process. Trust my dance. Trust myself. Getting there one painting at a time.
Friday, October 1, 2010
Being Held
This is what I came up with. People dancing in community, filling space above, below, in front, beside and behind them. In a faceted world. Now I see it as my family, bound together in a house of cards, vulnerable to falling through the cracks. I try and keep the yellow field strong for them, offering love and support so that they don't slip through the bars. There is only so much I can do in my compromised energy level? Am I doing the right things? Should I be doing more? Is there enough structure that I can do less? let go? focus on myself? Go out into the world 10 hours a day to bring home the bacon and provide a roof over their heads, money to pay for their activities, and have health insurance to stave off disaster? Is it too much for me to handle or do I trust myself to persevere and believe we will still be connected and loving when some of it falls apart?
Monday, September 20, 2010
Days of Awe
At dance we sometimes brush each other, to cleanse and ground. I like to end by putting my hands on their feet, to feel the connection to the earth.
I wrote my first poem last night:
In my dance:
I am witnessed
I witness others
I receive
I offer
I love
I am loved
I am open
I can forgive
I can choose not to let fear color my beautiful precious moment of now
I can trust that I shall do whatever has to be done to stay present, open, and healthy.
Thursday, September 16, 2010
Calm amidst Chaos
That was the theme for last night's dance. I painted chaos around the figure and it was too much for me so I took white and tried to smooth it over, which did calm it and me down.
During my dance I was thinking of the big ugly scar on my breast, and how a buddhist friend said it could be a reminder of the impermanence of life. I've been considering that now for a couple of months and I find it is instead a reminder to open my heart and feel gratitude. I am thankful for all that I have.
Thursday, September 9, 2010
Acknowledgment
Wednesday, September 8, 2010
Back to it.
Saturday, July 31, 2010
Big Sky and Glaciers
Now I'm home, feeling refreshed and relaxed. I actually forgot about my troubles for a few days. Aa is home and he had an "awesome" time. He arrived home the night before I came in and he surprised me while I was waiting for my luggage. He looked healthy and strong with a wide smile and he gave me a big hug. I wanted to cry. Four weeks was the longest I had been away from him for 15 years.
Sunday, July 11, 2010
Commonweal Organization
Saturday I spent the day "in retreat" at the Yoga Healing Center in San Francisco, sponsored by the Commonweal organization for cancer patients. Among other things, Commonweal runs the Cancer Help Program, which addresses the unmet needs of people with cancer. I first heard about the center from reading Rachel Noami Remen's book, Kitchen Table Wisdom, back in 1997. It told the stories of those affected by cancer and how with the aid of Dr. Remen, they were able to connect to aspects of themselves that allowed their healing to unfold, whether that meant living longer or living more fully with the time they had left. That book, along with Stephen Levine's Healing into Life and Death, was a book I felt compelled to gift to people many times. I now realize I need to find another copy and re-read it.
The day was guided by the experience and love of the Commonweal staff and attended by a handful of other women affected by cancer. Sharing my story and hearing theirs, was poignant and touching. One of my challenges is to balance hope for the future with the threat of recurrence. Some women have been revisited two and three times, a devastating blow. The possibility is real and always hanging over one's head. We did yoga and had a delicious vegetarian meal prepared by Rebecca Katz. She joined us for a discussion of foods and recipes and we were all given her book, The Cancer-Fighting Kitchen. It was inspiring. At the end of the day, after a guided meditation, I left the center and walked along the streets of the Marina district to the water at Crissy field. I felt strong and warm (with blustering winds, fog rolling in and my jacket wrapped around my head) and hopeful that cancer won't define my life.
Monday, July 5, 2010
Tamoxifen
A couple of hours later in conversation with another little league mom, she revealed her diagnosis date and time of day from two years ago, her choice of mastectomy and chemo, and her daily intake of Tamoxifen and a pill that keeps cancer from returning in your bones. (Interesting. She is on the faculty at the UC school of public health and upon her diagnosis, changed all her insurance so she could go to UCSF, citing it as the cutting edge in breast cancer research. They recommend the bone pill and a pelvic sonogram as a baseline for uterine cancer, one of the Tamoxifen side effects.) Aside from those juicy suggestions, what she said that really resonated with me, is that over a year later, she still has a hard time accepting menopause at 44.
"A hard time accepting." Yes. I am not alone.
Friday, July 2, 2010
Distance
Thursday, June 24, 2010
The radiation fatigue is lightening up and I'm starting to feel better. It's been almost 5 months of living with the knowledge I have cancer. Now I need to start living with the sense that the cancer has been eradicated and I've survived it. I am now a BC survivor. (time to get a pink ribbon for the back of the car ?) I'm in the process of revamping my attitude and making changes to my life to increase zest. Dance and paint. I read a book called "Cancer As A Turning Point." It's premise is that the key to boosting your immune system is to find what in life lights your fire, makes you want to hop out of bed in the morning and gives purpose to your days; to do NOW what you have put off for the future, to take more control of some things and give up control of other things. Finding that balance is the challenge, but posting my paintings to share with all of you is a big thrill for me.
Thanks for tuning in and looking!
Wednesday, June 16, 2010
Dance Retreat
So despite my fatigue and increasing burn pain from the radiation, I decided to go. I didn't have the same joi de vive that I usually exhibit, in fact, during each of the 4 dance sessions I had to step out for the high energy songs, but Eva was so understanding and gracious to accommodate whatever I needed and to let me know when to come back in to participate in the exercises. We drew with pastels, witnessed each other dance, wrote words for others and then poetry from those words about our dance. Very powerful and fun to spend time in that deep world of somatic expression.
Saturday afternoon R, a fellow dancer, offered me a healing session. I had no idea what that meant, but I gratefully accepted. I layed down and he sat next to me with his drum. He coached me to imagine going underground to meet my spirit guide. I chose a spot in Joshua Tree that had held me a few weeks ago and I visualized going under ground there. I met a wolf and it seemed so predictable. I asked if he was my spirit guide and the answer was no. I met a fox and it seemed too sneaky, and the answer was no. I saw a cobra snake and really wanted it to be my guide, but I figured I had created that image out of desire and maybe it hadn't presented itself authentically, but as I continued, the snake wrapped itself around my ankle and tripped me. I tried to get up, but instead the snake and I were swimming like dolphins in a cave. So Cobra snake as spirit guide it is.
Wednesday's dance theme: "To hold space for yourself and the dance..."
I tried to hold that theme in mind as I went into the studio, but I really wanted to paint a snake. Now I can see I did paint a space for myself and the dance, in a container with a wide brim and a snake to hold me. To dance and be held, yet open to possibility. That is what i love and that is just what happened. Thank you Eva and the Core Connexion community!
Wednesday, June 9, 2010
Elaine Young: September 24, 1921-June 9, 2010
I got the call at 9:30 in the morning that E had died. After 9 days of no food or water, her spirit and body parted ways. She has left a void and we will miss her. This painting is dedicated to her.
In the afternoon I emailed Eva for the dance theme for tonight. Eva wasn't sure where she was going with it and called to chat. I felt honored to be included in the conversation and discuss the important matters of life: breathing, grounding and being witnessed. How our body defines inner and outer space. She began with the core. It can be hard like a mountain, flow like the ocean, be wide like the sky and warm like the sun. Or it can be nothing; emptiness, nothing and everything. In the studio, I started with a circle in the center that came out squat like an egg. I painted around it, and as the surrounding colors and images evolved, I came back to the center void. It needed to be bigger and as I painted it become a round shape of nothing, all white. No boundaries. I thought of Elaine, who after 88 and half years, left her body on the surface of the earth and dissolved. As I painted ripples in the water and shadows on the mountains, I thought of Elaine leaving behind the material world that we still enjoy, the vistas, colors and beauty. I really wanted to keep painting and I was running out of time. 7 o'clock was creeping closer and I have to allow travel time to get it to the alter. It was 6:48. What more did the painting call for? A boundary around the white circle? a line to define it? or let it just be?... I went for it. I quickly outlined the circumference using different colors, two thin lines each, and then regretted it.
Looking at it after K and I pinned it to the wall in the space, I saw those outlines representing the what we use to define our being with; our mind, our emotions and our physical body. The line is the definition of our presence here and now Elaine is not. I guess I wasn't ready to accept that she is gone. Maybe I'll go back and paint the outline out when I am ready.
Today was also my last radiation treatment. Sixteen doses. Whew. The Dr. told me the side effects peak a week or two after treatment ends, the gift that keeps on giving, but nonetheless, I felt a milestone had been reached. Beams of radiation have been aimed into a specific area of my body with laser precision. It has left a burn patch on my skin with a clearly defined tan line, distinct boundaries, but it doesn't match any bathing suits I have and the color is more orange than a dark tan. All the fast growing cells in my left breast and surrounding chest have been killed. The healthy cells have been struggling for their lives and have increased my appetite with their demand for nutrition, feed me! The cancer cells are history, hasta la vista, sayonara, kapoot, being dismantled and re-absorbed as I write. Thank you high tech modern medicine.
I celebrated by dancing. I found a scarf in my dance bag that I used after surgery to reign myself in and tie my arm to my side. I used it to blindfold myself and create a boundary between my inner attention and relating to others. I let the music move through my body and breathe into each muscle one by one. I tune in and find where my breath is needed next. In the dance I can feel the delight of my body, moving, beating, shaking, swaying. It is nourishing, the opposite of empty, it is a refueling.
Thursday, June 3, 2010
Crossing over
Thursday, May 27, 2010
Backbone
Yesterday I had a meeting at SFO and with the rain and traffic, was 45 minutes late. I had to wait 35 minutes as women came on time for their appointments. If you go at the same time everyday, you see the same women, so I got to meet a few new faces, or new cases as it is. There is a camaraderie I feel as we wait in the skimmpy generic hospital gowns for our turn. I instantly feel a strong bond to them even though we are different sizes, shapes, skin colors and stories, we face the same challenges. I am one of the lucky ones that got to skip chemotherapy. Thank Goodness - Goddess.
Thursday, May 20, 2010
Radiant Surfing
I just got home from my third treatment. I'm whipped tired. Can't imagine it's from the radiation already, but compounded by other stresses and dance last night, it's not surprising. The dance theme was Feet. Feet connect us to the ground, from sole to the soul. They can weigh heavy on the earth or bounce and skip along. Here we have feet surfing the life force that radiates up from the center of the earth. Or maybe this is someone drumming with their feet. I like how between the legs looks like a different dimension, as if with both feet firmly planted, you, too, can enter or hop on and take a ride.
Wednesday, May 19, 2010
Just a body
It made me feel like a casualty, just one of many women who go through this, another medical record number to undress, lay down, get in, line up, clear the room and ZAP. Afterwards, while driving home, I realized how lucky I am. The equipment is expensive and state of the art, the building is only a year old, the technicians are highly trained and the doctors are there to help. I have to remind myself that I have CANCER and that this is to prevent it from growing and killing me. I know that sounds ridiculous, but being asymptomatic, cancer is a snarky disease, psychologically and biologically.
The steri-strips are still on my scar, and I expected them to be removed, but not so. I hope the scar isn't burned and darkened because of it, but I was assured that 3 weeks after surgery is enough healing time. Later I went for accupuncture and promptly fell asleep on the table while the needles were stimulating my meridians. She recommended an herbal burn cream which I applied last night. It has a great texture, but every time I turned over in my sleep I kept wondering what that smell was, and by morning I relunctantly realized it smells somewhat like an ash tray. Oh well. Thanks to the 2nd surgery, my radiation is 16 doses instead of 28, so my radiation is minimal. I'll be going every day for the next 4 weeks, but that's it. Then Tamoxifen for 5 years. Not having to endure Chemo is a gift I try and remember everyday.
At Ezri's baseball game on Sunday I chatted with the coach's wife. She went through this beginning 3 years ago, when her boys were 7 and 9. A mammogram had found a lump in her left breast and then an MRI found her right breast riddled with cancer. She had a double mastectomy, chemo, radiation, reconstruction surgery and now they want her ovaries removed. She volunteered to take me to my first appointment (which I thought was today.) I took her up on it (I would love the company) gave her my address, and then she asked me my name! I can't tell you how much that means to me. "Support" is taking on a whole new dimension. Thanks for all of yours.
Thursday, May 13, 2010
LifeForce
This morning my body feels great (back just a little tweeked) and my breast has it’s usual ache/pain at the site, so it was well worth it.
When I arrived and hung my painting up, I said to alter artist K, that they are all starting to look alike. She said it’s okay to paint the same thing over and over if that’s what needs to happen. During the dance I realized what the theme is that won’t let me go: Life Force. It wants to be acknowledged coming up from the earth and into my being. The paintings are trying to remind me that this is a good thing, something to cultivate and cherish.
I am so grateful for my paint dance practice and for those who make it happen and share it. I love all of you.
Tuesday, May 11, 2010
Booster avoided
Thanks to the 2nd surgery and the successful achievement of clean margins, I will NOT have to have the radiation boost to the tumor site! Yeah..thank you Dr. L for scooping out some more! I had a CT scan yesterday to figure out the positioning of my body and the angle of the radiation beams. Next week I'll go for the "verification" meeting, so radiation will start after that and last 4 weeks. The fatigue is cumulative so they said expect weeks 5-7 to be part of treatment. That takes me to the end of June and then I'll start Tamoxifen. So I'm in good spirits. No exercise for weeks here so feeling chunky and stiff. Recovery from surgery has been harder the 2nd time around, but worth it. I've been working hard on my SFO furniture project so that has kept me focused. Today the bids were due at 10 so I feel like goofing off and taking a break, but still so much to do.
This heart painting was done over the weekend with the left over paint on my palette when it was time to clean up. I did a painting retreat with Robin all day Sat and Sun morning. The garden at P's house is gorgeous and it was hard not to just lounge and nap all day instead.
Saturday, May 1, 2010
Late night Ramblings
So here I am blogging about my cancer journey. I get to dig into my archives and post paintings long since dried while I try and keep my family and friends up to date with my prognosis and treatment plan to rid cancer from my body and prevent it from coming back. I've gotten opinions and 2ned opinions and listened to their interpretations of the information and considered the statistics that I am told. I've just minimized my chance of a local recurrence having the 2nd surgery. Check. The probability of having a distant recurrence is now key. "The distant" part of that means a recurrence that is not in your breast next time around. Breast Cancer can "present" itself in a different organ or system. Sounds nasty, because it is. BC cells corrupt healthy cells in a distinctive unique way. If I can make it 10 years without a distant recurrence, it is the gold standard of survival. It means you have just as good a chance of dying from some disease other than breast cancer. Like heart or kidney failure. If I have radiation and survive 10 years, there might be the chance for the collateral damage from the radiation to express itself. Maybe I'll be lucky enough to die of something else after 3 more decades of good living. To get there, I have "quality of life" trade-offs. The radiation to my breast will kill the fast growing cells of the cancer lurking behind, dividing like speed demons trying to infiltrate the healthy cells. The trade off is radiation exposure on all the breast tissue, tighter skin, a really bad sun burn for 7 weeks and exhaustion. Not too bad, I guess that is tolerable.
After a few debilitating weeks of radiation, I'll start taking Tamoxifen. They recommend starting one after the other so we can tell what caused what side effects. One pill a day for 5 years. It will block the estrogen that my body still produces from being absorbed by my cells, the good ones and the cancerous ones, which use estrogen as fuel. They've ruined it for all my cells, including the ones that need estrogen to keep my mind functioning as best it can, my memory working enough to be able to open the front door of my own house, and my skin from drying out. Maybe I'll tolerate all that just fine, like the lucky women who don't lose their hair during chemo. And I've been lucky so far, not having to be facing chemo right now!
Staying alive trumps all those petty discomforts, after all, they are tradeoffs, and life itself is the highest purpose. Looking at my future life through the quality of life lens is a perspective I hadn't imagined viewing through just after turning 50. I was just getting used to the 5 as the first digit in my age. I had just started swimming a mile at a time instead of 3/4! I was dancing and hiking and feeling strong and alive. Five decades of being on this planet in this body and proud of it. Even if it is such a big number, half way to one hundred, half a CENTURY! I started my life in 1959. Someone 50 at that time would have been born in 1909! and they would have seemed really old then.
I was 1, 2, and 3 years old during the 3 seasons of MadMen Leon and I have been watching, escaping into since my cancer was "found out". Each episode consumes us. It's as if we are there, in the saturated colors of the early 60's, sitting in the Knoll chairs, driving the behemoths of Detroit's excess, zipped up tight with our hats and gloves in stylish Manhattan, stuck in the gender and race defined roles, sitting in the front row of the nascent business of advertising and seeing how those times influenced the culture I grew up in and live in now. Our Modern Times. After 40 minutes when I come back to my reality, I think, "oh yeah, I have Breast Cancer." With a capital B and C. In 1961 I probably would have had a double mastectomy by now.
Today on this beautiful May Day, I tried to lay still and heal. Leon took Ezri to a Cal baseball game, Aaron went to a climbing competition in Davis, and I was visiting all my lez friends in LA on the L Word.
Friday, April 30, 2010
Newsflash!
Thursday, April 29, 2010
Sunday, April 25, 2010
Looping back Around
Okay, it turns out I'm not going forward with radiation right away, it's being postponed. I'm going to repeat a step and have a 2nd surgery, by a 2nd opinion surgeon out of Walnut Creek Kaiser, on Tuesday. I decided this Friday morning. Best scenario is that she goes in again and doesn't find anymore cancer, then it will have been for naught, except my peace of mind, and hers. I couldn't let go of the close margins around the tumors they took out. The pathology report had said carcinoma "within 1 mm" of the margin. Also, if she takes out more tissue and can get wider clean margins, I might not have to have a radiation boost (7-10 zaps directly to the tumor site), which happens to be within an inch of my heart...with my lungs nearby. The fact is, radiation not only will kill cancer cells left in my breast, it also can give you cancer in nearby organs... collateral damage they like to down play. I'd still have radiation to the whole breast, and I may still need the boost, but if I don't, that alone would make this 2nd surgery worthwhile.
Choices, choices...it is ultimately my decision because it is my body and my life. It is awkward to go contrary to the recommendations of my Oakland doctors. The oncologist wrote in my chart, "the patient continues to perseverate on the close margins and not her great prognosis." Is this me focusing on the negative instead of the positive? or is it me being prudent and trusting my instincts? Dr. L feels strongly this is the right thing to do, but she is a surgeon and is used to solving problems with surgery. Could a positive attitude have kept a recurrence at bay? That is too much to ask of myself, I'd feel more confident with a 2nd viewing of the tissue in my breast. A confirmation that nothing got left behind.
A 2nd surgery means I may be lopsided, so there is the aesthetic sacrifice. But I am willing to trade it for the highest chance of avoiding a recurrence. If one has a recurrence in the same breast, radiation isn't offered a 2nd time, so mastectomy it would be. This is hard because I feel so healthy. I have to remind myself that the cancer would kill me if I don't make decisions and get treatment, and anyone who knows me, knows that I sweat out every tiny minuscule choice I have to make and then rarely let it go once I've made it.
So Debbie is coming in tomorrow afternoon to be here for me and my family, and lovely cousin Hillary will pick her up. Recovery should be faster because this surgery won't be under general anesthesia since no lymph node dissection is happening. I'm told not to dance as soon after this time, which I will heed, given the arm complication and scar tissue I now contend with.
Today was gorgeous weather. Ezri had a baseball game and Aaron joined us and it was a lovely day. Tomorrow I will pass off my work project to my boss to meet a deadline, and Tuesday will be Surrender. Unknown. Trust. Faith. Confidence. Thanks to all my friends and family whose love and prayers give me strength, really. You remind me that I'm not crazy, there is a lot to contend with in my life these days, but being around for another couple of decades will make it all worthwhile. Namaste.
Tuesday, April 20, 2010
Going forward
I'm somewhat relieved. I really didn't want a 2nd surgery, I haven't quite healed from the first one. Any cancer left in my breast should be zapped and killed with radiation, and then if that doesn't get them, the 5 years of daily oral Tamoxifen will block the estrogen receptors on the tumor cells and not allow them to grow. My chance of a reoccurence remains at 6%, so odds are in my favor! Whew. Now I can go forward. CT scan on Friday to chart the coordinates of the beams to my breast so that they minimize radiation exposure to my heart and lungs. I assume radiation starts next week. I'll go daily for 5-7 weeks, not sure yet. Lucky for me there is valet parking. I've heard it makes you very tired and then it takes a few weeks to get your energy back. I'm open to donations of healthy soups and such to keep me going, and then it will be summertime, when the living is easy!
Thursday, April 15, 2010
Comfort Zones
Today I met the 2nd opinion oncologist, Dr. K, at Walnut Creek Kaiser. She confirmed and explained the low OncotypeDX score and how chemotherapy will NOT decrease chances of a reoccurence, so NO chemo for me...Yeah!! My ship has come in! My luck has turned around! Let's go to the races!
However, her concern, as was mine, are the close margins around the lumpectomy. The pathology report says "infiltrating carcinoma found within 1 mm of the medial margin and DCIS is present within 1 mm of the lateral margin." I was always trouble by the word "within." My Dr. friend had told me that margin depth is a big source of discussion and controversy in the breast cancer field and my oncologist Dr. T said she is comfortable with the "within 1". Dr. K prefers a 2 mm margin and is going to talk to my surgeon, Dr. O'N to find out if there is any more margin to be had. The medial margin is the center line, and where the tumors was taken out along my chest wall and skin, there is no more tissue to get. But maybe on the lateral side there is. We'll see what Dr. O'N says, hopefully by early next week.
Meanwhile, I see Dr. K, the Oakland oncologist tomorrow to learn about Tamoxifen. I am officially still pre-menopausal because my estrogen level is 354 and if post menopausal it would be below 30. My one ovary (unless the other is hiding) is still pumping out loads of estrogen at almost 51. (no wonder I got pregnant at 42) Monday I meet the radiation oncologist to plan that exciting holiday.
However, if a 2nd surgery is recommended, all goes on hold to scoop more out, and as much as I don't want repeat that ride, maybe my future is worth it.
Suspended
I feel suspended in the not knowing whether I'll have chemo or not, whether I'll have a reoccurence somewhere in my body within 5 years or not, whether I'll be able to get a job with health insurance when my cobra runs out in October or not, whether I'll have work this summer or not, whether Ezri will find a school that fits him or a soccer team that wants him or not, whether my arm will ever heal or not....and on and on. The dance gives me a place to move and breathe into all the unknowns and be with what I do know. I know have a strong chi, the life force that is still coursing through me with a creative energy that loves to be expressed through paint. I know I have a family that loves me and a community of friends that prays for me. I know I will survive and thrive and drive myself to do what needs to be done. That I will put one foot in front of the other and continue to do what I can for my boys. That I will emerge from this challenging time and see the gift that this life threatening illness offers; how to let go, move on, appreciate each moment and be grateful for all that I do have.
Saturday, April 10, 2010
Feeling Lucky
The Oncotype DX test is a diagnostic test to learn more about the biological activity of the specific tumor. Along with other pieces of information, the results from the Oncotype DX test can help women and their doctors make decisions about whether or not to include chemotherapy in their treatment plan. It can also help indicate how likely it is that a woman’s cancer may return in the future (distant recurrence).
The Oncotype DX test looks at a group of 21 genes within a woman’s tumor sample—16 cancer genes and 5 control genes—to see how they are expressed, or how active they are. The results of the test are reported as a quantitative Recurrence Score® result, which is a score between 0 and 100 that correlates with the likelihood of a woman’s chances of having her cancer return, and the likelihood that she will benefit from adding chemotherapy to her hormonal therapy. (anything below 18 is considered "low risk" for reoccurence within 10 years without chemotherapy.)
The Oncotype DX test provides information in addition to standard measurements (such as tumor size, tumor grade and lymph node status) that doctors have traditionally used to estimate how likely a woman’s cancer is to return, and to help her make treatment decisions.
My score of 8 means the average rate of distant recurrence after 5 years of Tamoxifen and 5 years after that (10 yrs total) is 6% without chemotherapy, which is a very low probability, but if I'm one of the six out of 100, then that's still no good! But if any left over tumor cells don't respond well to chemotherapy, the side effects aren't worth it. The Tamoxifin is a hormonal therapy that should inhibit tumor growth systemically. Next Thursday April 15th I'm going to get a 2nd opinion from a Kaiser oncologist in Walnut Creek, and then meet with my oncologist Eva Thomas in Oakland the following day to put it all together and get a treatment plan. Radiation is a given, likely 5 times a day for 7 weeks or so, but I think my breast needs to heal from surgery before it can begin. Tamoxifen for 5 years is also a given, but I don't know when that will start.So I'm excited to have a low Oncotype score, but I'm not ready to jump for joy until I get a second opinion, I'm hopeful, but still waiting to exhale.
The theme from last weeks dance was the NEW body... After the chrysalis is broken. I had drawn the outline of the figure a couple of weeks before while feeling jubilant and even though my body is feeling battered and bruised, and my lymph node arm is still painful, on Wednesday afternoon, I approached the figure with that theme. The spring time is about new growth and opportunity. I was imagining pure spirit coming up from the earth to rejuvenate and heal my vehicle and allow me to carry the life force in this way a few more years...and I'm feeling lucky that with your love and support, that is what will unfold. Namaste.
Thursday, April 8, 2010
Moonscape
Here is a photo of my boys in Joshua Tree. If you love rocks, and I do, it is spectacular. Our first night was a full moon and Aaron and I could walk around in a black and white world with out a flashlight, one of my favorite things in life to do! The rocks are very porous and easy to grip. Within a few minutes with little effort you can be 40' up with giant views all around. I'm thinking we should go again next spring break, anyone want to join us?
Sunday, March 28, 2010
Road Trip!
I'm hoping for some quiet and rejuvenation. Then we meet my family in Palm Desert for bike riding, some golf (Aunt Debbie's influence) and relaxation. Last year in Death Valley at this time was spectacular and Seymour and Kathryn had met us there and we all enjoyed it. So here we go again, loaded down with bicycles, camping gear and way too much stuff...Life is Good!
Thursday, March 25, 2010
Dance Medicine
Got back into my paint dance routine last night, yet almost ruined it. I mistakenly took a phone call right as I was leaving the house to go into the studio. It was my Dad's good friend, Dr. P, who at 82 has been an oncologist specializing in breast cancer for 50 years. I had faxed him the pathology report the day before at my Dad's request and he launched right into saying I needed to have a biopsy done on my right breast as well, but should consider a double mastectomy because cosmetically it would look better if done at the same time, etc. I was somewhat taken aback and said he was way ahead of me. I was still basking in my good news of negative nodes and Stage I. Long story short, he thinks Kaiser is over simplifying the pathology report. Other hospitals consider Individual tumor cells found in the lymph node as positive, and others consider cancer cells within 2 mm of the margins as "not clean" (Kaiser's standard is within 1mm) and maybe others stage cancer as an aggregate of the tumor sizes. The conversation was very upsetting and I had unintentionally insulted him, as if kicking a gift horse in the mouth. I was on a deadline.
In the studio I was able to let that go and think about the theme from Eva...one's body and all it's parts. Parts that you may be happy or not happy with, parts that may hurt or not feel right, all the parts that make up our body. I feel I need to make peace with the cancer that was in/is in my body, trust the Dr's processes and my own decision making, grok the reality of scars, bruises and poison medicine. I need to find a balance of reality and hope, optimism and pragmatism. My body balanced in peace, that would be nice.
The dance was just where I needed to be. I was able to drop in and breathe into every muscle. I was able to stretch my arm and ask it's permission to go farther. I babied it, to be sure, but I also let it flow with my moves. It felt fantastic. My dancing partners were sensitive to my injury and yet I was able to find my strength and groove with my usual intensity and passion. I even got a few fabulous spins in. Today I have way more range of motion with my arm and I feel great! Thank you Eva and the Core Conexion community. I feel loved and worthy in my dance, and with gratitude, it's seeping into my waking life.
Tuesday, March 23, 2010
Stage I
So I was told to go back to dance tomorrow and start stretching my arm. No swimming yet, but I've been walking a lot.
We can all breathe a little easier, the future seems bright again...a few months of treatment instead of a whole year with both breasts still with me. Psychologically, I feel relieved.
Thanks again for all your support, it's powerful to know that people can influence the vibrations of the universe on my behalf (pray for me)
We made a sacrafice last week (Aaron and my bike got stolen on Thursday from our shed) so hopefully this will cover the oncotype DX test to give me a rating that suggests no chemo at all, but I don't want to be piggish ;)
Monday, March 22, 2010
Confusing
The margin is close but clear. There were a total of 3 nodes removed and in two of them there were isolated tumor cells. Dr. Thomas will explain what all this means. Not sure if it means the nodes are negative or positive, which determines chemo option. The Chemo option is all about probability and survival statistics. If I have a 1 in 10 chance of having a reoccurence within 5 years (which would not be good for overall life span projection) would I take that chance or not? If I qualify for the Oncotype DX test, how long does that take?
My recovery from the surgery is slow going. Not yet able to dance or swim, feeling bruised and swollen, but any denial that I have cancer is gone. It was hard swimming a mile and believing I had cancer at the same time, but now I get it.
Today I became a mother 15 years ago. It's Aaron birthday. He is a fine young man, handsome and smart, but oh what a daily challenge to keep up with, like him saying he'll be home at 6:30 and then not showing up until 8 with some lame excuse....ummm and him wondering what I'm so uptight about?
love you, Lauren
Friday, March 19, 2010
Now open for comments
Wednesday, March 17, 2010
Interesting
So it's not worst case, which is somewhat of a relief, but the net remedy could be just as extreme.
It's paint dance night, but the lack of sleep and new info has whipped me. Dr. said I could dance if I didn't move my arm and wore two sport bras...a little too challenging for me right now. I'll stay home and read my new breast cancer book! I feel loved, and love to all.
Tuesday, March 16, 2010
Worth reading
Just today someone asked me if it was the good kind of cancer. That's the 3rd or 4th time and I still don't know the answer, I have no idea what they are referring to.
I've also pondered the phrase "battle against cancer"
Last Wednesday after dance, in a hug with Eva, she said "the war is over." Somehow that resonated with me, cancer seems more like a surrender.
Doodle
Thank you for your calls, I'm sorry I can't take them all. I am tired of talking when I don’t yet have the full story, and as you all know, I’m someone who loves to sweep, fold laundry and do dishes while chatting on the phone. But what is there to say? I’m scared, I’m exhausted, I’m overwhelmed and it’s a wake up call to change my inner world, from one of stress and problems, to one of inner peace and faith. Tall order for anyone, extra challenging for me. Living with the unpredictability of each moment; from Ezri’s non cooperation for the simplest of requests to all of our struggles with order and patience, is very taxing.
So thank you for your concern and your prayers, I am becoming a believer. My Doctor, whom I trust on many levels, has been fear based from day one and had me believing worst case was to be expected. It took a lot to release that and trust that worst case is not a given, and I feel it’s been the power of prayer that is giving me a chance to not let that be so.
Sunday, March 14, 2010
thanks for the flowers and calls and food that has been offered to us. I've been well taken care of these last couple of days. The surgery went well, no cancer seen in the lymph nodes, but that will be confirmed on Wednesday with the pathology report, so I'm still waiting to exhale on that little piece of info that impacts a whole lot. The weather this weekend was glorious, but I stayed inside and watched The Titanic for the first time. What a wonderful diversion, now I know what all the fuss had been about. Also saw Sunshine Cleaners and Julie/Julia, it's fun to escape into the movies. Tonight we'll watch Up in the Air, and we have 3 more episodes of Mad Men to watch...yipee. Love you all, thanks for all the support. Aside from some tenderness, lots of cold congestion and being tired, I feel great.